CForYourself: Clinical Trials Day and CF research Artwork

CForYourself: A podcast from Cystic Fibrosis Trust

CForYourself is a podcast brought to you by UK charity, Cystic Fibrosis Trust. In each episode of CForYourself, host Lucy Baxter will be having a (virtual) cup of tea and a chat with others in the cystic fibrosis community about a whole range of topics, from exercise and employment to parenting and mental health. We’ll also hear from CF experts, who will be sharing their knowledge and advice for everyone affected by CF. CForYourself is all about sharing honest insights into life with cystic fibrosis: the good, the bad and everything in between. For more information about the podcast, and the work of the Trust, please visit https://www.cysticfibrosis.org.uk/podcast

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CForYourself: A podcast from Cystic Fibrosis Trust

CForYourself: Clinical Trials Day and CF research

May 20, 2025 • Cystic Fibrosis Trust • Season 3 • Episode 8

To mark Clinical Trials Day (20 May), we’re excited to be teaming up with US-based non-profit Emily’s Entourage on this episode of CForYourself.

Started by Emily Kramer-Golinkoff in her parent’s living room, Emily’s Entourage (EE) aims to speed-up lifesaving research and drug development for people with cystic fibrosis (CF) who do not benefit from current modulators.

“At Emily’s Entourage, we believe that every single person with CF deserves a lifesaving breakthrough, no matter how rare their mutation,” says Emily.

Our host Lucy enjoys a (virtual) tea and catch-up with Emily, who chats all about her CF journey, the inspiration behind EE, and her hopes for the future.

Also joining Lucy is Dr Maya Desai, a trustee at Cystic Fibrosis Trust and a consultant respiratory paediatrician, who has worked with children with CF since the early 1990s.

Maya has been involved with the Trust’s Clinical Trials Accelerator Platform since its launch in 2017. She is particularly passionate about increasing diversity in clinical trials and ensuring everyone with CF has the opportunity to access life-changing new treatments.

A big thank you to Emily and Maya for this insightful and powerful chat.

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