CForYourself: Parenting children with CF

Families experience and cope with CF in a number of different ways. The journey is not always predictable or easy, and every child and every story is different.

In this episode of CForYourself, our host Lucy enjoys a (virtual) cuppa with Lizzy, mum to 16-year-old Isaac, who has cystic fibrosis. Lizzy talks openly and honestly about her personal experiences of parenting,  what she's learned along the way, her advice for other families, and her hopes for Isaac's future.  We also hear from paediatric clinical psychologist Michèle Puckey, who shares her top tips for talking to a child about CF.

If you have questions about any of the topics raised in this episode, we're here for you. You can call our Helpline on 0300 373 1000, or email helpline@cysticfibrosis.org.uk.

• CF: What's it all about? - watch our new animation, which is  here to help children, their siblings and friends understand the condition in a fun and interactive way. 
• New diagnosis parent information pack - a series of resources to help families who have just found out that their child has cystic fibrosis.
• Helping your child with a physical health condition by Mandy Bryon and Penny Titman
• My Merry Moly World - Lizzy's blog 
• CF Forum - Join the conversation on our Forum and connect with other parents.
• Research that’s underway that could help those who don’t benefit from CFTR modulators